Chronically ill individuals are increasingly turning to medical assistance in dying (MAID) as a means of achieving a dignified death. This raises important questions about the quality of life for those with chronic illnesses and the role of healthcare systems in supporting them. The author, who lives with Type 1 diabetes and long COVID, reflects on the case of Kiano Vafaeian, a 26-year-old man granted MAID due to his severe physical and mental health conditions. The author argues that while MAID may provide a solution for some, it is not a comprehensive answer to the challenges faced by those with chronic illnesses. The healthcare system's failure to adequately support and accommodate individuals with chronic illnesses is a significant issue. The author highlights the loneliness and isolation experienced by those with chronic illnesses, as well as the lack of support networks and resources available to them. The author also discusses the concept of 'crip time' and the idea that society's relentless pace and focus on productivity can be detrimental to those with chronic illnesses. The author emphasizes the need for healthcare systems to prioritize patient advocacy and support, and to create spaces for individuals with chronic illnesses to feel a sense of belonging and meaning. The author concludes by reflecting on the complexities of living with a chronic illness and the difficult choices that individuals must make when considering MAID.
Chronically Ill & MAID: Seeking Dignity in Life, Not Just Death (2026)
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